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The Assistance Fund Opens New Program for Inherited Retinal Diseases

Eligible patients can receive financial support for health insurance premiums, copayments and incidental medical expenses

ORLANDO, Fla., January 18, 2018 — The Assistance Fund, an independent charitable patient assistance foundation that helps patients and families facing high medical out-of-pocket costs, today launched a new program that offers financial support for individuals with inherited retinal diseases. The fund will assist patients in paying out-of-pocket medical costs incurred as a result of their condition, including health insurance premiums, copayments and incidental medical expenses.

“On behalf of everyone at The Assistance Fund, I am excited to announce the opening of a new program that offers support to individuals who are living with inherited retinal diseases,” said Mark P. McGreevy, President, The Assistance Fund. “People with many forms of inherited retinal disease often face high medical expenses related to their treatment, putting their families under financial strain. This fund will relieve some of that pressure, allowing these families to focus on their health and well-being.”

Inherited retinal disease is a category of eye disorders caused by a gene mutation that affects the retina, or the light-sensing cells in the back of the eye. These conditions can affect a patient’s vision in different ways, including total blindness, night-blindness, tunnel vision, seeing dark areas in the center of vision, or seeing distortions of lines and shapes. Some inherited retinal diseases cause symptoms unrelated to vision as well, including hearing loss and neurological problems.1 Inherited retinal diseases affect approximately 200,000 Americans, with the largest percentile (40 percent) being diagnosed with retinitis pigmentosa. Other common inherited retinal diseases include Usher syndrome and cone-rod dystrophy.2

To learn more or determine eligibility for financial support, individuals should visit or call (855) 454-3054 to speak with a patient advocate.

A list of all the funds available at The Assistance Fund can be found on the website

About The Assistance Fund

The Assistance Fund is an independent charitable patient assistance foundation that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles and other health-related expenses. The Assistance Fund currently manages more than 30 funds – each of which covers the FDA-approved medications that treat a specific disease. Since its founding in 2009, The Assistance Fund has helped more than 43,000 adults and children access the medicines they need to stay healthy or manage a chronic condition. To learn more about The Assistance Fund, or for information on how to donate, please visit

Media Contact
Margaret Figley
Director of Communications


  1. “Inheritance of Retinal Degenerations.” Foundation Fighting Blindness. 2012, July. Retrieved from
  2. “Number of People with Macular Degeneration and Other Retinal Diseases.” Preventing Blindness. 2013, July. Retrieved from
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