Patient Resources
Welcome to TAF’s Patient Resource Hub. Below you will find a wide range of resources to address your needs.
Patient Resources
Acid Maltase Deficiency Association
American Parkinson Disease Association, Inc.
Aplastic Anemia and MDS International Foundation
Association for Glycogen Storage Disease
Asthma and Allergy Foundation of America
Bone Marrow and Cancer Foundation
Chronic Granulomatous Disease Association
Cold Agglutinin Disease Foundation
Crohn's and Colitis Foundation
Curing Retinal Blindness Foundation
Cystic Fibrosis Research Institute
Cystinosis Research Foundation
Fabry Support and Information Group
FOD (Fatty Oxidation Disorders) Family Support Group
Graves’ Disease and Thyroid Foundation
Guthy-Jackson Charitable Foundation
Head and Neck Cancer Support International
Hemophilia Federation of America
HypoPARAthyroidism Association, Inc.
International Rett Syndrome Foundation
Metastatic Breast Cancer Network
Multiple Sclerosis Association of America
Muscular Dystrophy Association
Myasthenia Gravis Foundation of America
Myositis Support and Understanding
National Coalition for Cancer Survivorship
National Fabry Disease Foundation
National Hemophilia Foundation
National Niemann Pick Disease Foundation
National Ovarian Cancer Coalition
National Urea Cycle Disorders Foundation
Oxalosis and Hyperoxaluria Foundation
Pancreatic Cancer Action Network
Parent Project Muscular Dystrophy
Parkinson’s Resource Organization
Platelet Disorders Support Association
Pulmonary Hypertension Association
Short Bowel Syndrome Foundation
Sickle Cell Disease Association of America
Siegel Rare Neuroimmune Association
SPOHNC-Support for People with Oral, Head and Neck Cancer
The Michael J. Fox Foundation for Parkinson’s Research Foundation
United Mitochondrial Disease Foundation
EveryLife Foundation for Rare Diseases
Genetic and Rare Diseases Information Center
Genetic and Rare Diseases Information Center
National Heart, Lung, and Blood Institute
National Institute of Allergy and Infectious Diseases
National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institute of Diabetes and Digestive and Kidney Diseases
Did you find what you were looking for? If not, email us at info@tafcares.org.
We welcome your feedback.
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The contact information for the individuals and organizations contained on this website is for general information purposes only. This information does not constitute any affiliation, endorsement or promotion by The Assistance Fund. This information does not constitute medical advice and is not intended to be relied upon for medical diagnosis or treatment. The Assistance Fund assumes no responsibility and shall in no event be liable for errors or omissions in the contents of this website, links to other websites, services ultimately provided by the individuals or organizations listed on this website or for any claims that may arise directly or indirectly from any such services. The Assistance Fund reserves the right to make additions, deletions, or modification to the contents of this website at any time without any prior notice.