The Assistance Fund Opens New Program for Cystinosis

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1 year ago


Financial Assistance from The Assistance Fund Now Available for Eligible People Living with Cystinosis

ORLANDO, Fla., January 16, 2020 — The Assistance Fund, an independent charitable patient assistance foundation that helps patients and families facing high medical out-of-pocket costs, today announced the launch of a new financial assistance program for people living with cystinosis. The program is designed to help eligible individuals pay for their out-of-pocket medical costs for treatment, such as copayments, health insurance premiums, and incidental medical expenses related to the condition.

Cystinosis is an autosomal recessive lysosomal storage disease resulting from a buildup of cystine in various organs and tissues, which can ultimately lead to severe organ dysfunction. Children experiencing cystinosis need treatment to maintain kidney function, with many eventually requiring a kidney transplant. Cystinosis can have affects on the brain and nervous systems.¹

“The out-of-pocket costs associated with a cystinosis diagnosis are challenging for our patient community,” said Mark P. McGreevy, President and CEO of The Assistance Fund. “Thanks to our generous donors, we are now able to help adults and children living with cystinosis to manage the severe implications of this disease.”

To learn more or determine eligibility for financial support, visit or call (855) 951-2670 to speak with a Patient Advocate.

A list of all the programs available from The Assistance Fund can be found on the website

About The Assistance Fund

The Assistance Fund is an independent charitable patient assistance foundation that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles and other health-related expenses. The Assistance Fund currently manages more than 60 programs – each of which covers the FDA-approved medications that treat a specific disease. Since its founding in 2009, The Assistance Fund has helped more than 78,000 adults and children access the medicines they need to stay healthy or manage a chronic condition. To learn more about The Assistance Fund, or for information on how to donate, please visit

Media Contact
Margaret Figley
Director of Communications

¹ “Nephropathic Cystinosis.” National Kidney Foundation. (November 26, 2019). Retrieved from:

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